Introducing...Chuck Mangione

Skin Hemangioma
Originally uploaded by silverzephyr.
Many of you have been curious about what Frankie's hemangioma actually looks like. Here's a photo of a very upset boy who did not enjoy his bath. His frog bath towel is pretty cute though. Anyway, my instinct is that it looks worse than what Frankie actually feels, which is good. We have an appointment later this month to see if the doctor recommends another laser treatment. At this point, we're just trying to keep it contained, not neccessarily "cure" it.


A Diary of Tummy Time: Stage 1

0-1 minutes: Hooray!

A Diary of Tummy Time: Stage 2

1-2 minutes: This is okay...I guess.

A Diary of Tummy Time: Stage Three

2-3 minutes: ...and the worm turns, as they say...

A Diary of Tummy Time: Stage Four

3 minutes: Sad Frankie


Angus Hangs Out

Angus In Leaves
Originally uploaded by silverzephyr.
Angus has made a full recovery! Our thanks to Dr. Baker and Dr. Lee at Allandale Vet Clinic. We didn't think ole boy was going to make it, but now you'd never know anything was wrong.

Frankie's Crib

Originally uploaded by silverzephyr.
Now a $250 cat bed!

Anna and Frankie

Anna and Frankie
Originally uploaded by silverzephyr.

Grandma and Grandpa B.

Grandma and Grandpa B
Originally uploaded by silverzephyr.
...and a very sleepy baby.

Frankie Is A Very Serious Young Man

Frankie Serious
Originally uploaded by silverzephyr.


A Brief Update...

An update on Frankie’s penis: the bandage glue has all fallen off and everything looks A-OK. We never saw any blood. I had no idea circumcision was such a hotly argued topic. Clearly, there are plenty of “pro” and “con” opinions out there, but this debate seems to generate as much heat as how you “train” your kid to sleep. {As of yet, we are more or less following Dr. Sears “attachment parenting” model (with a few reservations) so, in terms of rest, Frankie calls the shots. We often think of times past when we slept in on the weekends and sigh with longing.} In other news, we have doctor’s appointments tomorrow (about the skin hemangioma) and Friday (with the surgeon), then again next week. Hopefully, we will get an accurate updated weight and can fill you in on the boy’s progress.


Snip! Snip!

Frankie and his parents have had a rough week. Last Tuesday (the 29th), we took him to Seton Northwest for the laser treatment on his skin hemangioma. We got there at 6am and, sleepy but anxious, waited for our turn in the still dark lobby. There were two others in front of us – another baby and a small child. We talked to numerous nurses who asked us the same series of questions over and over, a checks and balances system that we actual appreciate, an anesthesiologist and the doctor before handing him over. We were not allowed to be in the room while the treatment was performed. After the laser treatment, Frankie’s shoulder looked, in a word, awful. It broke up the large scab that had formed and oozed blood and other nastiness. It was (and still is) shocking to see. I called the doctor’s office, panicked at its appearance, but they assured us it was behaving as they’d expected.

The intention of the laser was to keep the hemangioma from spreading – the doctor doesn’t want to remove any more than he already has to when the time comes. We have to re-bandage what is now a large open wound twice (or more) a day, keeping it as clean as possible. There have been some terrible instances when the bandage sticks to the wound and blood spurts out when it is removed – an incident which resulted in my (and Frankie’s) freak out on Saturday night. I was terrified that I’d done what we have always feared -- broken a capillary – and that a trip to the hospital was necessary. Luckily, Grandpa Frank was there to help and assured me that it was just the scab and we just needed to stop the bleeding and all would be fine (it was).

Frankie was circumcised yesterday. The surgeon that performed his TEF repair, Dr. Josephs, did the work at Children’s Hospital. It was another early morning with a 6:30am arrival time and a lot of pre-surgery prep (nurses, anesthesiologist, etc…) and a very cranky Frankie (we were not allowed to feed him after 1am). But there is nothing like a trip to Children’s Hospital to change your perspective about your own child’s difficulties. In the waiting room, we saw kids with more far more serious problems than Frankie. Several had obvious neurological disorders, flitting about the room unable to focus, some were in wheelchairs, others stared blankly into space. We were reminded that dealing with a problem like a skin hemangioma does not compare with the challenges other parents in that room were facing. Frankie will get better – many of these kids will never be normal.

We considered the risks and benefits of circumcision and, believe me, heard many a lecture on the cons (ironically, from people who did not actually have children). In the end, we decided that there were enough risks related to “keeping it clean” to have the procedure done in addition to the “traditional” aspect. I’ve heard many folks argue that circumcision should not happen because it is not a “religious tradition”; it is, however, is a secular American tradition. I guess I cringe at the idea of little Frankie being made fun of by goons in the locker room.

This morning, Dave reports that Frankie is cheerful and happy, so yesterday is perhaps a distant memory. We hope that all of these doctors visits and hospital trips will be as well.